Last month I entered Real Simple's Simply Stated Blogger Contest. They wanted a 300 word blog answering the question "Who Are You Most Surprised to be Friends With?" Well, needless to say I didn't make the top 10, but now that leaves me open to share this on my own blog. To my friends and family that do not have children with special needs and have been there for us through all the ups and downs with Toby - this blog does NOT mean I treasure your friendship any less - I love you too! I treasure all of you, but this was what I wrote for the blog contest!!
When I was expecting our third child, one thing I did not expect was a change in my circle of friends. At twenty-one weeks we learned he had the most severe form of Spina Bifida and Hydrocephalus. Several weeks later a college friend contacted me explaining that she knew another mom with a child with the same disability and thought it would be good for us to connect. At first, I was appalled and in denial; I didn’t need this mom’s support. I didn’t want to be grouped in with “those moms”.
At thirty-eight weeks, our precious Toby was born and because of complications he spent several months in the hospital. At three months old he came home with a tracheotomy tube, full-time ventilator support, a feeding tube, and private duty nursing in our home. At this point I realized that I needed “those moms” because… I was one of them. I joined support groups – online and locally.
Now my circle of friends includes many mothers of children with special needs. Whether it’s Jen in Fort Wayne, Cassie in Texas, or Erika in Columbus; they are my sisters walking with me in this journey. A circle of friends, I did not want to join, but could not live without. A desire of most people is to be understood, and these friends understand because they have walked in my flip-flops (as one friend so aptly put it!) They are my cheering section celebrating Toby’s first walker and a shoulder to cry on when he’s still eating pureed food at age four. They may have been unexpected friends, but unexpectedly their friendships are treasures of gold.
So - to all of my wonderful "friends" out there - some of you I have met in person, some of you I have not - we only talk through e-mail or the Spina Bifida FB group - sharing experiences, stories, advice, and support - this day is dedicated to you!
Now my circle of friends includes many mothers of children with special needs. Whether it’s Jen in Fort Wayne, Cassie in Texas, or Erika in Columbus; they are my sisters walking with me in this journey. A circle of friends, I did not want to join, but could not live without. A desire of most people is to be understood, and these friends understand because they have walked in my flip-flops (as one friend so aptly put it!) They are my cheering section celebrating Toby’s first walker and a shoulder to cry on when he’s still eating pureed food at age four. They may have been unexpected friends, but unexpectedly their friendships are treasures of gold.
So - to all of my wonderful "friends" out there - some of you I have met in person, some of you I have not - we only talk through e-mail or the Spina Bifida FB group - sharing experiences, stories, advice, and support - this day is dedicated to you!
