Toby had a pretty good night last night, he slept from about 11-7:30 a.m with just a few times when he became restless and needed his pacifier. I was thankful he rested so well, he's been needing some uninterrupted sleep. They're weaning him off of C-PAP today, and he seems to be doing well with it. We continue to wait.
Oh yes, I forgot to mention that his CT scan came back normal, his ventricles were completely collapsed, which means his shunt is working properly. Yeah! :)
Toby had an okay evening with daddy. They ended up having to change his feeding tube because upon x-ray they found his feeding tube was actually in his esophagus, instead of the valve that goes from his stomach to his intestine. They did take him off of C-PAP last night, and he seems to be faring well, he's on 0.5 liters of oxygen now. He only weighs 7 lbs. 2 oz., so he hasn't been growing much, pray he will continue to get stronger and gain weight. The ENT doctors are talking about doing a scope of his throat and vocal cords on Monday; he will probably be in the ICU through the weekend, so they can continue to monitor what he does without the C-PAP. Oh yes, something I hadn't mentioned is that his bladder is working great. He's out-putting the same amount he's in-putting, and when they cath him once a day they're getting less than 5 ml. Yeah! We hope this continues.
By Adrienne Rose — Feb 1, 2007 12:18am
ReplyDeleteToby looks more and more like Conor - the pictures are adorable. We are keeping all of you in our prayers and praying that Toby can go home very soon!
By Martha Minnich — Feb 1, 2007 6:06pm
ReplyDeleteJust wanted you to know how much I enjoyed my time with Toby today. He is a beautiful child....and strong! I could have looked at that little face + lips all day....little doll-face. I am praying for him, and for you guys!
Love, martha
By Mareta Longberry — Feb 1, 2007 6:55pm
ReplyDeleteHey there fam! Toby looks so big and so cute! He does look like Conor :0) We are thinking of you and praying for you. See you soon! Love and Hugs! Zach, Mareta and Lyndi
By Londa Foster — Feb 1, 2007 9:50pm
ReplyDeletePraise God!! He is answering prayer - - a normal CT scan, shunt working properly and a good night's sleep. God will continue to hear and answer our prayers for His precious Toby.
Carrie, I pray a good night's sleep for you, too. "But, You, O Lord, are a shield about me, my glory and the One who lifts my head....I lay down and slept; I awoke, for the Lord sustains me. I will not be afraid...." Psalm 3:3-6
By Aliena Holt — Feb 2, 2007 7:56am
ReplyDeleteYou are so cute little buddy! You look like your big brother, Conor!! Be a good boy and leave your IV in--the nurses don't like to have to poke you! :0) We love you, little guy, Auntie Aliena
By Andrea Bierer — Feb 2, 2007 11:05am
ReplyDeleteHe is so beautiful and precious! I want you to know that Doug and I pray for you and Toby and think of you often. Your strength is amazing and I truly wish I could be there to wrap my arms around you and help in a tangible way. Know that there are people in Erie who love you.
Love,
Doug, Andrea (Endicott), and Danika Bierer
By Sandi Tarapchak — Feb 2, 2007 11:52am
ReplyDeleteCarrie and Bruce--We've been praying for your family. It's so wonderful to hear great news about his bladder. We'll pray that he will start to gain weight so that he can get stronger. Take care and God bless you guys.
Stef, Sandi, Derek, Justin, & Carley Tarapchak
By Bev Maddox — Feb 3, 2007 9:42pm
ReplyDeleteCarrie,
Thank you keeping all of us informed of little Toby's concerns and praises. The new picture of him is darling! My prayers and thoughts are with you all.