Then, today Toby was supposed to be taking a nap, and he was awake - so our nurse looked in the video monitor and there was Toby lying in bed, waving around his g-tube in the air. We went in and he had a big smile on his face hiding behind his pacifier - he was laughing. The little stinker...it was kind of funny. The MicKey button has two parts where the different tubes hook into it, and the g-tube end came out. His MicKey Button is still in place, meaning he can still get his food, etc., but now we're headed to the hopsital an hour and a half earlier tomorrow night before the sleep study to get it replaced!!!
Also, Bruce and I are actually going to get away for a few days to Florida without kids!!! We're going with the Weise's and we're very excited. It's taking a lot of planning. My mom is coming to help with the older boys. A friend from church, Bruce's sister and sister-in-law who are both nurses are coming to help to take care of Toby in the times when we don't have nurses. Pray that things go smoothly, that Toby does NOT get sick, and that I don't fret while we're away. Thank you!
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