Happy Valentine's Day From NCH

Toby had a good day yesterday and a good night last night. He slept a lot, which was good. He is off of the ventilator completely and is back on the mist collar with just a little bit of oxygen through the collar. The mist collar humidifies the air that he breathes, and is something he will have at home. They also started him back on milk. Yesterday they were giving him IV fluids and 1 ml of pedialyte over 6 hours!! The nurse said she could spit more than that, which made us all laugh. So, he's been pretty hungry, but so far he is getting his food into his stomach, so that's good! He's now getting 15 ml over an hour. They wanted to give his stomach and digestive system time to wake up from the surgery on Tuesday, so they needed to give him food slowly. Tomorrow they're doing the sleep study. We're praying he sleeps so they can actually do the study!

CPAP - A Good Day!

Good evening. - Toby's had a good day, he continues to seem more like himself. He's been trying to lift his head up, and he gets ornery when the nurses change his diaper or give him a bath. He's been more awake and wide-eyed, especially when someone talks to him. They're trying to wean him off of the forced air pressure into his nose/airway, and his sats dropped a few times, so they bumped it back up. This is difficult for us because we just want him to be able to breathe without this extra help and come home. His sodium levels continue to be stable. They stopped giving him IV fluids, and he's now getting all of his nutrition through a continuous supply of milk! :) Tomorrow they should do the MRI. Our prayers for today are for Toby to be able breathe completely on his own, for the MRI to happen tomorrow as well as for its accuracy. They're probably going to have to put him under general anesthesia for the MRI, so pray that he tolerates that well also. One last request is for Bruce's parents, especially his mom. Bruce's grandmother (his mom's mom) is not doing well, and she was called to Texas to say her last goodbyes. This was expected, but it's obviously still difficult to say goodbye, and also to be torn in two directions (wanting to be here with Toby and then in Texas with her family). Thank you for lifting us up - God continues to give amazing peace and love. Goodnight.