Friday, July 20, 2007

Belly Distension and J-tube Displacement

Wednesday, July 18, 2007

Updates

Monday, July 16, 2007

Toby started Occupational Therapy

Friday, July 13, 2007

GJ-Tube Replacement and UTI

Toby does have high amounts of pseudomonas in his urine (a bacteria), so they are treating him again for that. It means he has a bladder infection. This is the second time in the last 3 weeks that they have found this bacteria. The problem with the antibiotic is that it's really thick and you have to crush a pill and mix it with water then put it into his feeding tube. The radiologist that replaced his feeding tube told us today to plan on being back in there on Sunday with a clogged tube if we put it into his J-tube so we called the Pulmonary doctors to see if we could have special permission to give the medicine into his g-tube and therefore his stomach. They were okay with it. The problem with Toby having anything in his stomach is he has reflux and then he could reflux up the medicine and because he can't swallow well he could aspirate it into his lungs. We don't think it will be an issue though because it's not a large amount of liquid.
The urologist also wants us to straight cath him every 4 hours to keep his bladder free any residual urine that might stay in there and then be a breeding ground for bacteria to grow. After he's done with the medication to get rid of the bacteria, they are starting him on a low dose of another antibiotic as a preventative measure for keeping his bladder "bacteria free".
I'm tired, it's been a long day, but hopefully Toby will be on the mend now. His lungs are still not sounding real great, so we will continue to work with that to make sure they are clear.

Thursday, July 12, 2007

Oxygen Needed

The appointment with the neurosurgeon went fine. His shunt seems to be working well, and we'll just have another check-up with him in 3 months. (Hopefully, no sooner than that!) We still haven't heard anything about Toby's urine culture and whether or not he has an infection, but we should today or tomorrow. Thank you for continuing to check up on us.

Tuesday, July 10, 2007

UTI

Monday, July 2, 2007

Trip to Michigan

I could feel everyone's prayers for me on Sunday. I believe God was able to use my song and testimony to touch people's hearts!
I will write more about our trip later! Thanks for praying!

It's Friday and we're home again!! We had a wonderful week visiting with my aunts, uncles, cousins, grandparents, and great-grandparents, and friends. We took photos of everyone holding Toby, and had a nice set-up with all of Toby's equipment. The weather was perfect - not too humid until the last few days. Conor and Garrett had a lot of fun eating s'mores, sitting around campfires, feeding fish in Grandma and Grandpa's mini pond, watching frogs, catching fireflies, enjoying Grandpa's fireworks, and picking raspberries until we couldn't eat anymore!! I was even able to make freezer jam and brought A LOT of berries back with us. We are tired, but it was such a wonderful trip. It was a blessing to share with my parent's church and visit with friends from there. Thank you for praying - Toby did great - Did you see Toby's web-site has over 20,000 hits!! I know that means that Toby has been thought of and/or prayed for at least that many times!! Amazing!! I will post some new photos soon from our trip.