Little Sleep

We're adjusting to being home with Toby. He's really a very good baby and doesn't cry unless he's hungry or uncomfortable. The biggest challenges of the last few days have been making sure we catheterize him properly, keeping him awake enough to eat, and caring for his incisions, etc. We're also trying to function without sleep. Toby likes to be held while he's sleeping in the middle of the night, so that makes it difficult for us to sleep. Thankfully the doctor said we could try cathing every 4 hours at night and every 3 hours during the day, so hopefully this will allow us to get some more rest. Bruce and I both miss Conor and Garrett. They'll be home on Monday. It's very quiet around here without them. I'm trying to appreciate that, but I think we're ready to have our family all back together again. Thankfully we do have help these next 2 weeks, so I won't be completely on my own yet. Pray that we have wisdom differentiating between normal baby behaviors and behaviors that would tell us his shunt is malfunctioning. This is one thing that has been stressful for us. Thank you for continuing to lift us up.

Shunt Surgery

Toby is in recovery, and the surgery went very well. The have taken the breathing tube out, but they're trying to get his body temperature back to normal. The nurse said this is very common. The neurosurgeon said that he could be eating by tonight. He still has to have other tests before he is released, and Bruce and I need to be trained to catheterize him. Urodynamic testing on the bladder and a renal ultrasound will be performed to see how his bladder and bowels are functioning. We're hoping that Toby will go home some time at the end of the week or weekend. This is much earlier than we had hoped for, however we will take it one day at a time and see what happens. God has blessed us, and we continue to praise Him for the blessings on us and Toby.