Monday, September 24, 2007

Mommy and Daddy are Going on a Trip

Friday, September 21, 2007

First Trip to Park

Wednesday, September 19, 2007

First Sleep Study

Monday, September 17, 2007

G-tube is In and G-tube is Out!

Then, today Toby was supposed to be taking a nap, and he was awake - so our nurse looked in the video monitor and there was Toby lying in bed, waving around his g-tube in the air. We went in and he had a big smile on his face hiding behind his pacifier - he was laughing. The little stinker...it was kind of funny. The MicKey button has two parts where the different tubes hook into it, and the g-tube end came out. His MicKey Button is still in place, meaning he can still get his food, etc., but now we're headed to the hopsital an hour and a half earlier tomorrow night before the sleep study to get it replaced!!!
Also, Bruce and I are actually going to get away for a few days to Florida without kids!!! We're going with the Weise's and we're very excited. It's taking a lot of planning. My mom is coming to help with the older boys. A friend from church, Bruce's sister and sister-in-law who are both nurses are coming to help to take care of Toby in the times when we don't have nurses. Pray that things go smoothly, that Toby does NOT get sick, and that I don't fret while we're away. Thank you!

Wednesday, September 12, 2007

First Hair Cut

Things are going well, not much to update medically. When you don't read any updates - assume everything is going well! :) He has a sleep study next Tuesday night overnight, which will be involved - just getting him to the hospital, etc. and I will be staying with him overnight. I hope it goes well, and that we both get some sleep! Have a great day.

Wednesday, September 5, 2007

God Continues to Provide

The issue with the HomeCare Waiver is still in "limbo", but I've been able to get a few answers from someone at the Ohio Jobs and Family Services Department. I know they're scheduling hearings a few months out, so it may be awhile before this issue is resolved. Thank you for your continued prayers. God continues to provide for our nursing care, therapy, etc.

Friday, August 31, 2007

Pulmonary Appointment