Hello :) Toby's pulmonary appointment went very well today. His chest x-ray looked great. The doctor was a little bit concerned about the wheezing he heard in his lungs and that we hear at home, so he's putting him on another medication. The other thing we're really watching is his weight. He lost weight last week, and so we called the nutritionist and they increased his calories, and he gained it back, but we are still needing to keep a close eye on it. It gets confusing because each specialist weighs him and it's different on every scale! We just try to base it on the way we weigh him at home. The next big appointment is the sleep study in 2 1/2 weeks. The pulmonologist will be relying on this to really tell him how well the ventilator is supporting Toby. That's all for now - we're going to enjoy the beautiful weather this weekend with family. Have a great Labor Day.
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