Update on Toby - we heard the results of the sleep study from our pulmonologist. They are very happy with how the ventilator is supporting Toby, so that was good news. I still voiced my concerns over how he didn't seem to sleep as deep as he does at home breathing right with the vent at 12 breathes per minute. According to the study he did go through all the sleep stages, but the doctor was still comfortable with increasing his breathe rate to 16 at night if he desaturates in O2 levels. They will do another study in 6 months. We are also waiting for insurance to approve the monthly synagis or RSV vaccines during this nasty cold/flu/RSV season. RSV is a very bad respiratory virus and because of Toby's condition he should qualify for the shots. Last, but certainly not least - and a HUGE PRAISE to GOD - is that we are keeping the Ohio Home Care Waiver. We actually requested for an additional nursing shift during the week so Bruce can join choir again at church. It has been his ministry for so long and he really needs to be involved again, but I just can't go it alone with all 3 kids weekly, so we asked for it. Insurance denied and then we were able to submit it to Medicaid. It was approved, which means we're actually using our waiver, so we can keep it and the Medicaid card which picks up extra medical expenses!! The only reason why we might need to attend a hearing now is to contest their decision to move Toby to a different type of waiver. It's a complicated explanation, so I won't go into it, but pray that this will also be resolved outside of a hearing.
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