2nd Myelo Clinic Appt.

Toby's Myelo Clinic appointments went well today - we were there for a LONG time, though. His renal ultrasound showed no swelling in his kidneys (good news). He had an OT evaluation, and we also had the Physical Medicine Doctor and the Orthopedic Surgeon look at his hips. They didn't seem too concerned, but his left hip might be out of place (which I guess seems like something to be concerned about - but she said they really can't do anything about it now or wouldn't do anything about it now - not sure why, need to ask more questions about that). They did take an x-ray of his hips to double check, but we didn't get those results. The Developmental Pediatrician gave us some good ideas for a medicine and an herbal supplement that puts good bacteria back into his bowels to help him with his belly distension, etc. We also were able to get a couple of prescriptions for some equipment (a Tumbleform Feeding Chair and a Wedge for positioning) that will help Toby sit up with help, and also to strengthen his body when he's on his tummy. I'm looking into how we're going to get these items and who's going to pay for them, so pray for us on that. We also saw the opthalmologist about his eyes (these kids have a presdisposition to eye crossing, etc. and it runs in our family - i.e. Conor had eye surgery for this). There was just enough time for him to look at Toby and say that his eyes were moving together, but we didn't have time for him to actually dilate his eyes to look at the nerve. It's not urgent, so they will complete this at the next Myelo Clinic in 3 months. We still have to straight cath Toby every 4 hours - to keep his bladder empty. The plus about this is it will keep his kidneys and bladder healthy, which we want, so I'm okay with doing this. I think that's all - sorry for the LONG update. I'll try to post some new photos soon - Toby weighs almost 15 pounds and is 24 inches long - He's getting to be a big boy! Have a great weekend.