Nothing huge to report. Toby's having a good week. I bought him the Fisher Price Space Saver High Chair yesterday. It's a booster seat type chair that has a tray and good head support as well as the 5-point harness system, so we can sit him up more and he can play with things on his tray. He seems to do well in it. Friday we have to go to the hospital for a barium enema - they want to see how his digestive system is working, and also they're putting in the MicKey button (new feeding type of tube). Evan's pulmonologist told Erika (his mom) that there's a very bad respiratory virus going around right now - the hospital went from having 9 patients to 21 patients the next day with it, so please pray that God will protect Toby when we go for his appointments on Friday.
Just in - a new prayer request. They're threatening to pull Medicaid Waiver on us again. They will be sending out a nurse to do another evaluation. I'm so frustrated and tired of dealing with this. Please pray, pray, pray - if they pull waiver, it will mean a lot of out of pocket expense for us - Right now the waiver helps to cover doctor co-payments, prescriptions, and therapy. Plus when insurance decides not to pay for in home nursing care we will not have nurses either. I'm trying not to panic, and just trust, but please pray. Thank you.
Just in - a new prayer request. They're threatening to pull Medicaid Waiver on us again. They will be sending out a nurse to do another evaluation. I'm so frustrated and tired of dealing with this. Please pray, pray, pray - if they pull waiver, it will mean a lot of out of pocket expense for us - Right now the waiver helps to cover doctor co-payments, prescriptions, and therapy. Plus when insurance decides not to pay for in home nursing care we will not have nurses either. I'm trying not to panic, and just trust, but please pray. Thank you.
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