Toby is doing pretty well. He has a rectal biopsy scheduled for Friday, Aug. 31st, and they are also planning on doing another sleep study in the middle of September. The sleep study will determine how well the ventilator is supporting him, and if the settings are correct on the vent. His new Mic-Key button feeding tube is working very well. We are going to appeal at a State Hearing the decision to disenroll Toby from the Ohio Home Care Waiver. They have good reasons to be dis-enrolling Toby, because technically he has not used the services to cover the nurses - our insurance is still paying for the nurses, but everyone we have spoken with from different State Agencies have recommended the hearing - just to gather information and to advocate for Toby. Conor starts pre-school this week at Worthington Christian; we met his teacher today and I think it's going to be wonderful. One other prayer request that we do ask for - My Grandfather is going to be having an extensive surgery on his back on Sept. 4th, please pray for this. Thank you so much for continuing to stay up to date on Toby and our family! -Carrie
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