Hi Everyone. This is Erika updating. Toby has still had episodes of desaturation (oxygen levels dropping). Yesterday he had a CT scan done and it showed no compression on his brain stem. His spinal fluid is moving very well (which is good). This means, however, that a decompression surgery would not help his breathing issues at all. Therefore, the only option right now is a tracheostomy. Because he has had quite a few episodes of turning blue, they want to put the trach in either tonight or tomorrow morning. Then the doctors will need to decide whether he is ok with just a trach or if he needs a ventilator (breathing machine) as well.
As a mother of a child with a trach and ventilator, I know how unsettling the thought of a trach can be. I also know that Toby will be a happier baby when he can breathe better! His parents will "breathe" better, too.
Thank you so much for your prayers during this time of transition. Carrie and Bruce have a lot to learn over the next few weeks, but God will give them the strength and they will do a wonderful job!
By Mimi Anglin — Feb 7, 2007 1:20pm
ReplyDeleteCarrie and Bruce,
I pray that the transition for Toby and his trach will go smoothly. I know that you two will handle it beautifully:) You are such wonderful parents and are always amazing me. I will continue to lift you all up in prayer and pray that Toby will be breathing well soon:)
All faith in HIM!
Mimi
By Twila Headings — Feb 7, 2007 1:57pm
ReplyDeleteBruce, Carrie,and boys,
Just wanted to let you know that you have been on my mind a lot lately and I keep lifting you up in my prayers. May God continue to give you strength for each new day! My little guys are praying for you guys in their good night prayers.
With much love and prayers, Twila Headings
By Mareta Longberry — Feb 7, 2007 2:20pm
ReplyDeleteHey guys! We will be thinking of you all today. We are happy Toby will be able to breathe better, and that he won't need decompression surgery. We love you! Zach, Ta, and Lyndi
By Toni Mishler — Feb 7, 2007 7:23pm
ReplyDeleteHi, Bruce, Carrie, and little pumpkin Toby--
Toby, you are so precious........God has had so many lives touched by your little life already. Our entire church has been praying for you.......they are praying for you now even as I write.
Bruce and Carrie, we love you and pray for you daily. Mom called--I know today has been rough with the surgery and all. You two have been so strong......we can all see Jesus through you in this. Our prayers and love are with you, and we hope to be able to come visit soon. Please give Toby hugs and kisses for all of us--we miss you!
Tom, Toni, and kids