Toby was off of the oxygen last night for about 6 hours, and did pretty well. They ended up putting him back on the oxygen after a few times where he dropped his oxygen levels. This was during a very deep sleep where he had some periods of pausing in his breathing. He is looking quite swollen in his face today, and has been extremely restless. He's also having a very gassy stomach, which we can't quite figure out the cause of. Please pray that we can figure out the causes of these problems - they're not major, but definitely just one more thing to deal with. I'm certainly feeling discouraged and frustrated with the slow pace of things, and the time it takes to find the right doctor to make any decision about a problem he's having. It's requiring a lot of patience! It looks like they will put his feeding tube into his stomach either Monday or Tuesday, and then next Thursday they will do the sleep study. My parents are taking the boys home with them on Sunday for at least a week, maybe two, as we start to prepare for Toby to come home. I'm overwhelmed at the equipment and room set-up we're going to need to be bring him home. We're praying we can get some type of nursing help to take care of him, so I can at least get out of the house a few hours a week. Lots of things for us to think about. God continues to ask us to trust HIM, sometimes it's even minute by minute. He reminds me that His mercies are new every morning, and His compassions fail not (Lamentations 3). Good night.
By mareta longberry — Feb 9, 2007 6:33am
ReplyDeleteBru, Carrie, and boys, Hang in there! You have covered a lot of new territory this week...I am so thankful that you have your friend Erika who has been through alot of this before. We are so excited to come next week and see all the boys (and you) :0) We love you all so much! Zach, Mareta and Lyndi
y Abigail Crawford — Feb 9, 2007 11:43am
ReplyDeleteFor this reason I kneel before the Father, from whom his whole family in heaven and on earth derives its name. I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge--that you may be filled to the measure of all the fullness of God. Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.
That is my prayer for you today.
By Angel Aschleman — Feb 10, 2007 7:12am
ReplyDeleteDear Carrie and family,
Your precious little Toby (and the rest of your family) are in our prayers. I pray that God continues to hold him in his hand and that He continues to give you the strength that you need.
Angel (Soderman) Aschleman
By Sonya Judkins — Feb 10, 2007 7:37pm
ReplyDeleteYour amazing faith is an incredible inspiration to all who know you. Hang in there and remember God wants to carry these burdens for you so don't be afraid to let go. I love you so much!
Sonya