Toby had a good day. They threaded the smaller tube into his jejunum (small intestine), through the g-tube (larger tube in his stomach). He seems very content on the ventilator. He's sleeping well, and I believe weighs about 8 pounds. He even had a massage today from a therapist. She even taught me some things to do to soothe him. We're learning more and more about his care, and it's going well. I feel very comfortable suctioning out his trach, and Bruce and I have both been practicing quite a bit. They continue to work on coordinating his care at home. So, we wait! :) The boys come home on Saturday, which we can't wait. We miss them very much. Conor also has eye surgery to move the muscles outwards, since he crosses them even with his glasses. It's at Children's - outpatient, but pray for him. This is my child that can't stand to have his blood pressure taken!! :) I don't think he's going to do well with no food after midnight until surgery. I know God will help all of us through that also. Have a good night!
By Amy Meyers — Feb 22, 2007 6:26am
ReplyDeleteCarrie and Bruce,
Your unwavering faith and trust in God during this very difficult time is a beautiful witness to everyone. We'll continue to pray for your family that God sustains you with His peace. He will provide you with what you need to get through this and to take care of your baby boy!
By Mareta Longberry — Feb 22, 2007 7:22am
ReplyDeleteWe are happy to hear you are on the road toward Home! That must be so refreshing after this long month. We love you and are praying for all of you. Zach, Mareta and Lyndi
By Heather Bjerke — Feb 22, 2007 10:17pm
ReplyDeleteHI Carrie and Bruce,
Can you tell us exactly when Conor's surgery is so we can pray for that?? Praying Toby continues to get stronger so you can go home with him :-) Love you
In His Name
Heather and Craig