Today Toby is going to have a CT scan. They also are planning on having Toby on a ventilator while he's sleeping, and on the mist collar when he's awake. They are going to switch him to a home vent. This doesn't mean he's going home, I just think it's one similar to what he would use at home to see how he tolerates it because can be different. After they see how he does with the vent., then they will try bolus feeds again. No results yet from the sleep study, but it seems he is going to need a vent when he sleeps as a result of the apnea. I don't know if he can grow out of this or not; I need to ask, and even then they may not know either. Bruce and I practiced changing out the trach and trach ties today on a dummy. When they switch him over to the home vent they will also begin training us on that. It will probably still be at least 2 more weeks before he can come home (it might take that long to have insurance approve and supply a home ventilator). It's not what we would have wanted, but we're okay with it. God is giving us joy, and we're enjoying our sweet baby boy.
By Amy Cook — Feb 19, 2007 10:01am
ReplyDeleteWhat a beautiful baby boy. You guys are so blessed. I am thankful your mother gave me this website so I could visit it and see Toby. I am praying for you and your family Carrie! Congratulations!
By Gail Fabian — Feb 19, 2007 10:18am
ReplyDeleteA parishioner approached me after Mass and prayer for Toby Sunday. He said he has a brother with Spina Bifida and who was celebrating his 31st birthday that very day...that GOOD news of hope and faith overwhelmed me..so I ask the Lord to teach us the virtue of patience in this time of suffering and realize that little Toby is joined to Christ in his suffering for the salvation of the world...and we continue to pray for his recovery.
By Abigail Crawford — Feb 19, 2007 1:20pm
ReplyDelete"The Lord is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. "
Isaiah 40:28-31
I read this verse today and thought about all of you. I am praying this for you today.
Abigail
By Sally Sulc — Feb 19, 2007 2:17pm
ReplyDeleteJust wanted to let you know that you are in our prayers. Toby has been through so much recently and I am sure you are overwhelmed with all that you are experiencing. We are praying for wisdom and guidance and for daily strength. Let me know if you have any needs!
Sally
By Jamele Wenger — Feb 19, 2007 8:53pm
ReplyDeleteDear Carrie and Bruce,
I am amazed by the thousands of visits you have received. It is awesome to see so many people approaching the Throne of God on your behalf! Praise the Lord!
Love,
Jamele