Believe Me Now

This is Carrie just wanting to write a quick update - I'm home, going to get some rest tonight. Toby has reflux and probably because of the spina bifida has trouble coordinating his sucking/swallowing reflex. When he eats he aspirates the milk into his lungs, which puts him at risk for infection. We have many questions for the doctor tomorrow about what this means, but so far they're treating it with the feeding tube through his nose. The good news, his oxygen level finally went up to 100%, and they were going to take him off of the extra oxygen tonight. They also think that his weak cry and loss of voice is due to the reflux affecting his vocal chords, causing them to be inflamed, etc.

Thank you for praying; it's been a rough day - feeling torn between home and the hospital. It's so hard not being able to feed Toby myself, he cries because he wants to eat and can't. Pray that he will either outgrow this problem, or be able to learn to eat by mouth again. God gave me some reassurance tonight through a song by Stephen Curtis Chapman called Believe Me Now. Here's a portion of the words.

I am the One who waved my hand and split the ocean I am the One who spoke the words and raised the dead And I've loved you long before I set the world in motion I know all the fears you're feeling now But do you remember who I am? Do you? So believe Me now; Believe it's true/I never have, I never will abandon you. And the God that I have always been, I will forever be, So believe me now I am the God Who never wastes a single hurt, that you endure; My words are true and all my promises are sure, So believe me now!

We continue to trust God! Good night.