Toby got his MRI last night and the results didn't really tell them anything they didn't already know. His brain wasn't compressed too badly and spinal fluid was flowing around the brain which is good.
Although the MRI went well, the night was very rough. Toby was finally extubated (the breathing tube was removed) around 2am and after that he was very agitated. A combination of coming off the anesthesia and a tube down his throat to take the air out of his stomach, made Toby irritable. Once he settled down around 4am, Carrie went back to watching his monitors. Needless to say, she didn't get much sleep!
Toby was again agitated this morning. Finally, the doctors agreed to take the tube out of his throat. They will measure his stomach to make sure it is not filling up with air. If it does, they will have to put the tube back in. Sodium levels are up at normal ranges still which is a good sign. He is back on C-PAP and a little bit of O2, but is still having a few apneic episodes.
The doctors want Toby's sodium levels to stay at normal for at least 10-14 days so that his brain has a chance to heal. I guess when his sodium levels dropped so much they said his brain was very sick. They want to see what happens after his brain has a chance to heal. If he is still having the same issues, they will inspect his shunt and make sure that is not the cause. If it isn't, the last resort will be to trach him. Of course, this is hard news to hear!
Now it is just a waiting game to see what happens. Pray, again, for strength, endurance and that God would work out all the details with Conor and Garrett's care, too!
By Jess Dillow — Jan 23, 2007 12:07pm
ReplyDeleteDear Carrie,
I am glad to hear that the MRI went well, but sad to hear that your night was rough. I'm praying that you have some peaceful sleep today, and that God gives you a special way of knowing how much He cares and is taking care of you and your family. I know that faith is believing without seeing, but sometimes a sign gives us a little help...something to hold on to. I am also praying that Toby continues to improve and that his numbers and stats are consistently normal. We love you and are thinking of you and checking the website daily!
Love,
Jess, Tate and Allister Dillow
By Heather Morgan-Boucher — Jan 23, 2007 1:24pm
ReplyDeleteCarrie, Bruce and family,
Congratulations on the birth of baby Toby. He is absolutely adorable. Conor and Garrett look so proud to be big brothers! You are in our prayers each day as you continue on this journey. Stay strong and love each other.
Love,
Heather, Todd, Jack, Nia and Riley Morgan-Boucher
By Sally Sulc — Jan 23, 2007 4:40pm
ReplyDeleteHi Bruce and Carrie,
I was able to read all of your notes today and am filled with awe at all you have endured in the past few weeks. Praise God that He is able to sustain you. Again I offer my help if at all needed. I am available to come to the hospital or to your home. I know the difficulty of having one in the hospital and the rest at home. I am praying for you and look forward to seeing God work.
Sally
By Aunty Kay Panter — Jan 23, 2007 6:31pm
ReplyDeleteHello Karrie and Bruce
I pray very hard for Toby I hope he does well. I love him already and I have not met him yet but he our little angel. God Bless and if I can do anything let me know
Love Aunty Kay