Toby is doing pretty well today. His sodium is 134, and they are slowly increasing the amount of milk he is getting through his feeding tube. He's more awake and knowledgeable of the fact that he isn't eating by mouth, so he's more fussy, but we like it that way, because we know he's getting back to "normal". He continues to have the apnea, especially when he's getting into a deep sleep. They decided to put the MRI off until Monday because of a few reasons. They want to make sure his sodium levels are stable enough so the photos of his brain will be accurate (i.e. no swelling of his brain from low sodium). They also don't feel it's an emergency, and since it's the weekend...we wait until Monday. They began weaning him off of the oxygen and the support of forced air, and his oxygen levels dropped some, so they turned the forced air back up, but left the oxygen levels lower. The biggest requests for today are to find out what's causing the low sodium, and for his breathing to improve, so he doesn't need the forced air to breathe. Ultimately we want to take him home feeding by mouth, so that is also a request. My parents are here again helping us with the boys, and my sister was here on Friday to help. We're so thankful that all of the grandparents and aunts have been here and can be here to help us. Have a great day.
By Karen Lane — Jan 20, 2007 2:53pm
ReplyDeleteHi Bruce & Carrie,
I love the verse from Deuteronomy that you have on your site today! Oh how that should be all our prayers! We love you guys and continue to storm heaven on behalf of your precious Toby and for strength and peace for you.
By Katie Miller — Jan 20, 2007 4:02pm
ReplyDeleteI'm still praying for all of you. May the Lord continue to be with you and give you peace. I pray for wisdom for the doctors as they seek to know what is wrong. Blessings!
By Ann Graham — Jan 20, 2007 11:47pm
ReplyDeleteDear Bruce & Carrie,
Erika has been letting us know how Toby's doing- we've been praying for him and strength for you.